Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, October 9, 2009
Baby Aunt
Bo's great aunt, my mother's only sister, passed away suddenly this week. Not enough tears were shed. Are they ever? She would have turned 59 in November. There is not enough solace in the world to comfort the unmooring of reality.
3 comments:
oh kinn, i'm so sorry to hear that. my thoughts are with you and your family - especially your mom. xox
our prayers are with you and your family! love you, xoxoxo
I am so very sorry for your loss. Your aunt was a very beautiful woman. My thoughts are with you and your family.
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