Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, September 17, 2009
Too Many People
Our house today saw: mother in law, contractor, appliance guy, 2 teachers, 1 new nurse, father in law, neighbor, us. Too many people, not enough napping = early bedtime. Aside from no-nap, Bo was in high spirits.
I love the acorn video, Bo is such a cutie! Nora is an acorn fanatic also. :) I'm very sorry to hear that Bo broke his leg and I hope he heals quickly.
4 comments:
to quote my grandmother, that's "too much visiting." I hope the rest of the weekend proves to be quieter.
acorn!acorn!acorn!
love the acorn!!!!!!!!!!!!!!!!!
I love the acorn video, Bo is such a cutie! Nora is an acorn fanatic also. :)
I'm very sorry to hear that Bo broke his leg and I hope he heals quickly.
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