Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Sunday, April 12, 2009
Easter Egg Hunt 1.0
Bo went to 2 egg hunts. These pix are from the 1st one like 2 weeks ago. I had to place the egg in his hand. By the second one, he was straining at the rope, ready to get some eggs! What a funny guy.
Bo went to 2 egg hunts. These pix are from the 1st one like 2 weeks ago. I had to place the egg in his hand. By the second one, he was straining at the rope, ready to get some eggs! What a funny guy.
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