Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, March 30, 2009
From Feb's Broviac Replacement
The lag in posting pix is one part foot dragging and one part emotional. I just can't bear to post anything scary while or too soon after it's happened. While I know this frustrates many of you kind readers who would appreciate very current photos, I just can't do it. These pix, for instance are from February's broviac replacement surgery. So the pix I posted around that time had nothing to do with this, which was soothing for me, and allowed me to look at pix of baby that didn't increase my blood pressure. And posting these pix today, a month and a half after the fact only make my heart skip a beat a few times, instead of stopping it entirely. All's well that ends well.
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2 comments:
oh. look at that Mama love with his hand on your chest... so safe and close. so scary for you all... xo
pang! that's my heart beating for you both. please don't ever worry about posting current pics. whatever you post is what's perfect at the time and being highly close and personal myself, i completely get it. bo cuddling up is so sweet. pang, there goes my heart again.
xoxoxo
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