Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
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2 comments:
baby buns are always in style. fo- sure. Finny went through a skirt/ kilt phase as he also hates pants.
oh my goodness i love the baby buns!!! muuuuuaaaah!!!
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