Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, September 4, 2008
Bouncing Baby K (Potassium)
Now the Potassium is too high and we get to check into the DeVos Suites. Long weekend in Grand Rapids. I spoke too soon.
Now the Potassium is too high and we get to check into the DeVos Suites. Long weekend in Grand Rapids. I spoke too soon.
2 comments:
sending love and big hugs xoxoxo
hugs, hugs, hugs, down with the potassium! my heart is with you!!
Post a Comment