Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Saturday, August 30, 2008
So Far, So Good
We are enjoying the lush quiet long weekend together. Bo's behavior is still a little more fussy and irritable than I think is normal, but then, his front teeth haven't come all the way in, yet.
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