And, so far, so good. We've had lots of visitors and done lots of visiting and Bo seems to be in the pink after all that pink eye fuss was over. In fact, I think he's starting to gain weight again. He had only gained a pound in the 7 weeks we've been back. I'm sure his weight-gain was stalled by his viral infection, the subsequent dehyration and recovery, as well as the pink eye.
Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, December 28, 2007
Sitting Up!
And, so far, so good. We've had lots of visitors and done lots of visiting and Bo seems to be in the pink after all that pink eye fuss was over. In fact, I think he's starting to gain weight again. He had only gained a pound in the 7 weeks we've been back. I'm sure his weight-gain was stalled by his viral infection, the subsequent dehyration and recovery, as well as the pink eye.
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1 comment:
so so cute - this pic is awesome. I am so sorry I did not get to see you guys. I am hoping we can come out again for some more death mtn action and if we do I will ring you asap.
I just got super wiped out this december.
btw- how was you birthday? I am sure:
1. Bo slept through the night
2. You took at least one luxurious nap during the day
3. oh and of course you went to the spa and went out for a gourmet dinner...
HA...
I am sure you were:
1. drooled and/or puked on
2. got big drooley Bo kisses
3. Got a "you're awesome, babe" look from your ever lovin' mate.
ahhh, and strangely this is just as good. Not that I don't fantasize about massages at a spa now and then...
anyhow, I vote this next year rocks for you!
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