Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Tuesday, December 4, 2007
Boo Boo's Bear Suit
He stays warm on his walks with a German footmuff and the bearsuit. Sometimes he gets so relaxed he falls asleep and we let him finish out his nap in the sunroom. He loves his walkies.
1 comment:
oooh...i love those fall leaves sprinkling color all over the ground. boo boo looks so adorable and so cozy!!!!
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