Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, October 17, 2007
Planning a Triumphant Return Home
Like Odysseus, the return home after many adventures brings you back to a familiar, but unknown place; a place of conflict, confusion, celebration and discovery. We plan to be home by the first weekend in November.
1 comment:
Such a beautiful picture of mother and son!!
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