I am seriously considering moving to New England for the superior medical care. Actually, Bronson provides care on par with Boston, but they are such a small community hosptial that they do not have a pediatric GI specialist on staff.
Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Saturday, October 20, 2007
It's the Journey, Stupid
Our fancy doctor at the fancy University of Michigan "we're ranked 12 in US News and World Report" Hospital refused to adopt the protocol to administer Omegaven to Bo. She said that if U of M couldn't get it, then no other hospital in Michigan would be able to get it. This is patently untrue. She also said that it would be too much paperwork for her to do to get it, and that we were legally prevented from paying for it, the U of M hospitals wouldn't pay for it, and she certainly wasn't going to pay for it. This is in contrast to the docs at Children's Hospital, Boston, who put in their own money to start a Foundation to pay for the Omegaven for kids whose insurance wouldn't pay. If she's so against saving Bo's life, why would she bother to be a pediatric GI specialist? What kind of medical practice is this?
I am seriously considering moving to New England for the superior medical care. Actually, Bronson provides care on par with Boston, but they are such a small community hosptial that they do not have a pediatric GI specialist on staff.
I am seriously considering moving to New England for the superior medical care. Actually, Bronson provides care on par with Boston, but they are such a small community hosptial that they do not have a pediatric GI specialist on staff.
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