Home at last

We brought baby Bo home for the first time in his life, July 9, 2007. Not only are we first-time parents, but our son has very high-tech special needs. So we were faced with late-night diaper changes, in addition to the terror of changing the dressing to his IV line ourselves (weekly). Luckily we got a stellar visiting nurse who came every day for a week, and weekly thereafter.

An explanation of Microvillous Inclusion Disease (MID). The finger-like protrusions that are microvilli are supposed to be on the surface of the intestines to give surface area for absorbing nutrients from food you have digested. His microvilli are apparently in these bubbles, or inclusions, imbedded in the tissue instead of on its surface. His biopsy looks a lot like the one on the right. Since it is so rare, there really isn't any conventional wisdom or body of knowledge around it, or the patients who have it. The belief is that none of their microvilli are in the right place and that these kids cannot absorb anything. But why does oral tylenol elixir work for Bo, then? There's no real explanation from his doc. The oldest living kids in the US are in their early 20's. They are even rarer than Bo!