Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, May 20, 2009
Monday, May 18, 2009
Friday, May 15, 2009
Thursday, May 14, 2009
Wednesday, May 13, 2009
Saturday, May 9, 2009
Miss Smarty Pants, To You
So the cultures from Bo's site grew Pseudomonas. This is a waterbourne bacteria. And its presence there tells me that the press 'n seal without a dressing change after a bath is not enough. We will try the biopatch and the press 'n seal, but if he gets or sustains a site infection, we may have to get more strict with out bathing procedures.
Friday, May 8, 2009
Biopatch, Here We Come
We followed Boston's 2007 dressing change protocol exclusively until now. Up to this point, Bo had never had a site infection and only one line infection. The last 2 months he's had 2 site infections back to back. So for today's dressing change, we will try the J&J Biopatch. It's a foam disc @ the size of a dime impregnated with chlorhexidine. Hopefully, Bo is no longer sensitive (I know, I'm hoping) to this chemical. It's a microbicide that should kill the bacteria that dare come near the site.
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