Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, September 23, 2011
ch-ch-ch-ch-cherry BOMB
So I dropped the Bomb on Tuesday and packed it all in today, Friday.
I get a week off (paid), that's good. I spent my whole industrial career there, so now I feel very confused, that's bad. We are covered by my old employers' insurance until my new one kicks in, that's good. It's through COBRA, that's not all bad, but I have no idea how much that will cost, so that's a little bad. I don't have to move or make big changes that will traumatize the kids or Bo's medical state, that's good. It requires a commute, that's bad. I have no gaps in employment, that's really really really good. I'm feeling very insecure from all this change, that's bad. Leaving was gonna happen, and I would be facing a change no matter what, so on the balance, this is all good. This kind of seismic change is terrifying considering the responsibilities I have towards Bo's health and wellness, and being this freaked-out can only be bad. But hopefully it's short-lived, and that's good.
On the balance: it's all good. God is good.
Tuesday, September 20, 2011
New Job, New Maze of Coverage Q'a
I tendered my resignation today with mixed emotions. My whole industrial career has been at one company. I've worked and learned about different aspects of the business, they sponsored my VERY expensive MBA, and supported Bo through an extremely comprehensive insurance plan.
I am jumping into a new company and a new position. I know they have medical insurance, but I haven't seen the fine print. Not knowing makes me a bit nauseated, but there was really no other option. So jumping with a net of unknown quantity. So, now that the cat's out of the bag, the blog can be re-opened.
While I considered a nationwide search, and even a change of career, as second and third options, staying put and changing as little as possible was what seemed the best option for us, while Bo is still small and fragile. Being close to family, and the known quantities of hospitals, doctors and pharmacies was the conservative call.
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