Bo was our first child, so a typical child like Ahn is like having a first baby experience all over again. So many things we never dealt with: food in the hair, putting things in the mouth constantly, trying new foods by the bowl, using the stick blender.
Today, Ahn started smacking her lips. Her made-up sign language for "Solid Food!" So I popped her into the Bumbo and started shoveling blended green peas into her mouth. She had peas all over her cheeks, chin, hands (from sucking thumbs while eating- we have to roll her sleeves up!), and a runny nose (thank you Winter). Between bites she made the sign for Eat. Yes, I know. Then when the peas got too thick, she signed for milk! Then more Eat. Smart girl. Then, she signed, All Done. And with eye and nose rub, the natural sign for "sleepy," we went upstairs. And she went right to sleep.
And now, it's my turn. Good night.
Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, January 20, 2011
Friday, January 7, 2011
Couer is the heart of Courage
"Vulnerability is absolutely at the core of fear, and anxiety, and shame, and very difficult emotions that we all experience. But vulnerability is also the birthplace of joy, of love, of belonging, of creativity of faith." Dr. Brene Brown
It's taken over 20 years, two children, a career change and a life-threatening medical anomaly for my heart to catch up with my head, which is sad, as that head was precocious in high school, but simply on par at middle age. But, it's a blessing that it happened at all. I've seen the dark side that is left unbalanced *it's not pretty. Finally, I can embrace vulnerability and let the fear and anxiety and shame and difficult emotions turn to face me with their joy and love and belonging and creativity and faith.
Because, who is more vulnerable than a child? A medically fragile child? And who is more joyful than that little baby girl? Her brother in the rain (the week before the foot of snow we just got).
Subscribe to:
Posts (Atom)