Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, March 21, 2011
Kiss Them, They're Irish
No really. They're maternal grandmother is a Gilfoyle. Doesn't get more Irish than that.
I love the crying pix. They just crack me up. I'm not being mean, really. It's just so funny how dramatic they are.
I'm feeling the PTSD finally wearing off, and am wondering if my cognitive function will ever fully recover. My docs claim they will, but after being crippled for so long, I am skeptical. But, if my brain is working well enough for skepticism to register, I guess that is a good sign. It's humbling to lose control over the one thing you so prided yourself, and yet remain loved, unwaveringly. I am so grateful.
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2 comments:
LOL...lol...lol....
I love the crying and the screaming at me pics.
You ARE loved. xoxoxo
<3 YOU ARE SO LOVED!!!!
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