Cars!

Almost 2!

Pimp My Ride

Arthoppin' Popcorn

BFFs Reading

Baby Reloaded

He dragged this up from the basement.

Grapes!

Miss Smarty Pants, To You

So the cultures from Bo's site grew Pseudomonas. This is a waterbourne bacteria. And its presence there tells me that the press 'n seal without a dressing change after a bath is not enough. We will try the biopatch and the press 'n seal, but if he gets or sustains a site infection, we may have to get more strict with out bathing procedures.

Biopatch, Here We Come

We followed Boston's 2007 dressing change protocol exclusively until now. Up to this point, Bo had never had a site infection and only one line infection. The last 2 months he's had 2 site infections back to back. So for today's dressing change, we will try the J&J Biopatch. It's a foam disc @ the size of a dime impregnated with chlorhexidine. Hopefully, Bo is no longer sensitive (I know, I'm hoping) to this chemical. It's a microbicide that should kill the bacteria that dare come near the site.

Keys and Oops from Kinn-Ming Chan de Velarde on Vimeo.

Bo (like all toddlers) Loves Keys (and has a big head)

Angst

I read my girlfriend's blog about Max (see the link on the side bar for Max) and it made my whole soul ache. My avatar nodded and said, "Amen, amen, I say to you, amen, girl. I hear you." It makes the teeth of my heart chatter when I think about the everydayness of Bo's medical needs. People outside of this reality, including my own parents and sisters, feel intimidated and anxious about it. They probably feel sorry for us too.

But the funny thing is that I don't feel any of those things for myself or other families like ours. I spend my energy more on compassion than pity. More angry with bad specialists and skin-flint insurance companies than helpless wanderings.

But I remember a few times that I was so in denial that I forgot to hook up the baby after a day of playing. And every time I see a pregnant lady, I feel... so sad.