Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, August 25, 2008
Normal Labs and HOME!
Bo's labs were normal this morning. Jose and (hopefully) our home nurse are packing things up. He will have another draw on Wednesday and probably a follow-up visit with the nephrologist in GR. Thanks to all for your comments, emails, calls and prayers.
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