Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, October 12, 2009
Killing Me Softly with Raffi
We're a little behind on cool music for kids. My girlfriend has been feeding me her children's hand-me-downs culled from their collections while they sleep. I suspect she gets rid of, ahem, gifts, these gems to me because they have caused her enough brain damage, I mean, joy. Her boys are 9 and 5, so some stuff is as much as a decade behind. This, apparently, has no effect on Bo. He loves Raffi. Did I mention how much Bo loves Raffi? And the Wiggles. And Wonder Pets, who I thought I'd love because there is a duck named Ming-Ming. Except I discovered said duck has a "cute, childish" speech impediment. I wuv dat. No, wee-wee. I wuv it. Without music, driving the 100 miles to my parents would be hell. So, here's to you, Raffi!
And thank you, Ms. J for the Percy and James trains. Yes, I know all their names.
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