Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Bo is going to take off any day now. We are not prepared. These are from our trip to Boston at the end of September. Bo is now almost 26#, 30 inches tall, 49cm head circumference, and learning new words every day. He is a joy.
