Friday, October 24, 2008

From our August Stay at Bronson

It always takes me a while to recover emotionally from Bo's hospital stays. I always try to keep the blog updated, especially when he is in-patient, and especially about the critical information regarding his health. But I get the classic "hospital hangover." It's this crushing depression that sets in. It's not even like I'm thinking so much about the whatifs, but more the physiological aspect of the sustained surge of adrenaline wearing off, and leaving me exhausted and seratonin-deprived.

But here is Bo, skeptical of being back in the hospital, and me, making a go of it.

Happy Weekend,
Kinn

Thursday, October 23, 2008

Beaver Teeth!


His molars are coming in and he actually has more teeth now. But I'm bad mommy and publishing from my archives. Although I will say that I've only been posting chronologically. I'm just behind. What else is new?
We are in Chicago for the second of 2 child'space (Feldenkrais) workshops. Bo responded so beautifully last week that I could not deprive him of the last set of lessons.
Other than his molars causing cysts to form, and all the discomfort around that, Bo remains stable and cheerful, learning new words every day, and increasing his comprehension of language. We are so amazed by this guy's capacity for learning and loving life.
With a heart full of thanks,
Kinn

Monday, October 13, 2008

Weekend Recovery


Sleepy! Bo had a great weekend visiting with family. He loves his cousins so much. They taught him how to dance!
Aunties, Grandparents, and dogs!
On the Murray front, she has been AWOL. Not a very impressive first week on the job. I'm nervous and worried, but am holding off on the worried-sick till the freeze sets in. So far, I believe she is having fun with her freedom.

Friday, October 3, 2008

Despite the Economy, She Found a New Job


Murray is part of the miracles that lift our family up. A friend of a friend was "low on barn cats." But far from burning through cats, theirs is a small hobby farm half an hour south of town with four horses and several acres, a tidy house and lovely family with a few older and special needs cats patrolling the barn and pole barn.
This is her first week on the job, and I miss her dearly, but they were cool with me visiting. So I will go and see my girl next week with treats and maybe some supplys to show my gratitude for a new, animal loving family.
Thank you, God! For even watching out for the least of our furry family.

Wednesday, October 1, 2008

Feeling So Free


A new tooth has appeared and 3 more have just broken through. Bo is doing great and has been in high spirits. His visit with the nephrologist on Monday was great, and Jose and I met with the maternal/fetal medicine group in town regarding the new findings identifying the MID causing gene. Since the information is so new, and the technology has not been developed for commercial use yet, we are making things up as we go. As per usual, for us.

Thursday, September 25, 2008

No More Fever

Must've been a cold. He's still getting too much fluid, by my estimation. But that's way better than not enough. He's a little puffy.

But no more fever, and his antibiotics end today, so that should make his output decrease and his butt feel better.

Monday, September 22, 2008

Can't Wait to See You!

We got to have dinner with the O'Connors Friday night, and the Nwankwos on Saturday. What a great weekend. Although Bo was a bit of a bully and kept plucking the pacifier out of Sam's mouth. Not very nice. We were so excited to meet them; and delighted with how great Sammy s doing, and that they were going to get to fly home and be reunited as a family, too!

We had a crazy busy time getting everybody home yesterday. Bo was a great traveller. He slept through both flights. Passengers and crew both thanked and congratulated me in turn; as if I had anything to do with it.

We were all whipped and had deep sleep in our own beds. While Bo seems less gaggy, he ran a temperature last night, which as recurred this afternoon. So they drew labs and he missed his feeding clinic, again.

My knee-jerk reaction would be to crawl under my desk and hide. But since I am an adult, I will get through my email and go home to do laundry. Sigh.

It never ends.