Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, September 25, 2008
No More Fever
Must've been a cold. He's still getting too much fluid, by my estimation. But that's way better than not enough. He's a little puffy.
But no more fever, and his antibiotics end today, so that should make his output decrease and his butt feel better.
Must've been a cold. He's still getting too much fluid, by my estimation. But that's way better than not enough. He's a little puffy.
2 comments:
so good to hear!
oh my lordy he is so cute. smmoooosh ssmooosh muah!!
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