Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, March 24, 2011
My Own Private Snow White
My brain, the fragile beauty that fell into a deep dreamless sleep, awakens to motherhood, corporate intrigue and nuclear meltdown.
I'm sure there could have been better circumstances to regain my cognition, but better late than never, right?
Also, the Adventure Project exceeded their $10k/24hour goal and get the matching funds.
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