Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
4 comments:
omg, look at that grin!!
oh lordy i am totally smitten!!! xoxoxo
the grin is amazing...
omg, i had to come back and look at that grin!!! xoxoxo love you!
Post a Comment