Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Sunday, April 26, 2009
Hi-jinx @ the children's museum
Okay, so vimeo let me upload this clip, but then had weird layout issues. Can't win for losing. Add trains to the list of faves.
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