Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, June 26, 2008
Cheeks v Nose
The cheeks are gaining on the nose. It's a close race.
And, quick weaning/nursing update; that was a false alarm. He's still nursing 2-3x/day. And I'll keep pumping probably until his next birthday so we have milk in bottles in case he really does wean before then.
Bo, Kim and Jose (forgive my english) The family Velarde that here in Bolivia, are close to you in prayers to the Lord for Bo has good health, we do not knew the reality that you was passing, has been aunt Magda who said to us that you have this web, where we could see Bo, and we feel very thrilled by the pretty and healthy that he sees in the photos. We are glad much that he had the name of his great-grandfather Bernabe Velarde. You must know that we love Bo and from now we will be attentive to what he goes on with and if you need something in which we could help, say to us please. Here we are. Very much love, kisses in these beautiful cheeks and in this tiny mouth Velarde. embraces for you, have force to continue forward. Aunt Rita, uncle Hugo, Carla Rita, Carlos David, David, Carlos Hugo, Sonia, Carlos Luis y Yomar.
4 comments:
ooh i love nose and cheeks!!! yummy yum yum. love you little bo bo!!! xoxoxox
I'm so glad to hear it! All that good stuff from mama....
We have the same situation with Caleigh's nose v cheeks. Maybe it's our liquid fertilizer?
I've been meaning to ask you where you get all of Bo's clothes? It's getting harder for me to find button down outfits.
Holly
Bo, Kim and Jose
(forgive my english)
The family Velarde that here in Bolivia, are close to you in prayers to the Lord for Bo has good health, we do not knew the reality that you was passing, has been aunt Magda who said to us that you have this web, where we could see Bo, and we feel very thrilled by the pretty and healthy that he sees in the photos.
We are glad much that he had the name of his great-grandfather Bernabe Velarde. You must know that we love Bo and from now we will be attentive to what he goes on with and if you need something in which we could help, say to us please. Here we are.
Very much love, kisses in these beautiful cheeks and in this tiny mouth Velarde.
embraces for you, have force to continue forward.
Aunt Rita, uncle Hugo, Carla Rita, Carlos David, David, Carlos Hugo, Sonia, Carlos Luis y Yomar.
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