Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Sunday, March 2, 2008
Happy 9 Month Birthday!
We are officially out of the literature. Since there aren't that many recorded cases of MID, we're already working with a limited knowledge-base. But of those recorded cases, most of those stories tragically end by nine months. As of today, we have even less literature to reference for Bo. I won't say that we beat the odds, but that there are no numbers available to even calculate them now.
I went out and bought both size 3 and 4 overnight diapers, giddy with optimism.
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3 comments:
happy 9th month birthday to the wonderful miraculous bo and his equally awesome parents :) love,
heather
Woo Hoo! He's a survivor (cue the music) and so are you both! I'll just keep pouring on the Auntie Love since I'm sure all the love you've give him has been a factor. How do you say "trailblazer" in Chinese?
Happy 9 month birthday!!! and girl, the squirrel is in size 3 diapers and she's 20 months!!!!!! lol. i love that big hunk of a boo boo bear.
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