Worry and Sleep

Are we all still going to Boston? Should I go alone? Maybe Jose and Bo can come after all his docs return to Boston on Monday? Will we need to MedEvac them? And then fly back together? Will they let Bo on a commercial flight? How nervous should we be? How nervous are his docs?

I need to go either way. And really, I want the Boston guys to weigh in on how they think keeping Bo stable can be done. I am sleepy. He is sleeping. We are worrying. My throat is sore (!).

We need to make some decisions and get some logistics going. This is going to be a very last minute thing. Like, late in the morning tomorrow (Friday) we will make a decision. And start acting on that decision immediately.

Friday, or Bust

Dr. Doom + Other Dr. Doom = Friday discharge. Bo remains relatively stable, but with enough potassium fluctuation to warrant a fist fight between the good doctors. The only thing they can agree on is keeping Bo through Friday.

A picture from better days this summer.

Thursday Discharge, We Hope

There are 4 Docs following Bo during this week's stay: 2 GI's, a nephrologist and a hematologist. The equation for nights of stay = 1 business day/doc + 1; so we are hoping to go home Thursday. Cutting it close, but better than missing our flight to Boston on Saturday
(!). Bo is finally stable, had the catheter taken out yesterday morning and has been in high spirits all day. Sadly, the Cyr's won't be able to visit us when we are out there, but we are planning to meet up with them at next year's Oley conference in St. Petersburg, FL.

Rough Night

Bo had a horribly rough night last night due to the method of urine collection the nephrologist insisted on. But that's over, and hopefully we are in the home stretch of observation before discharge. He got a chance to play with a few other kids in the playroom, and will hopefully have another monster nap today to make up for his night of less than restful sleep.

Long Weekend Extended

Bo will have to remain in-patient at least till Wednesday. poor thing. Hopefully the next few days are for observation, only. Luckily, we were able to secure accommodations at the hospitality house here (like a Ronald McDonald House) through the end of the week. And we still have a few good friends in town, to help take the edge off.

Don't Forget the Ativan

Last night I talked to Dr Doom and was in no mood to post. After a good night's sleep- no yacking!- and a shower, and talking to Dr Doom again this morning, I feel more confident that we may actually get home Monday. They are collecting urine from Bo today and tomorrow, and hopefully this data will generate more answers, rather than more questions.

Mystery Baby

Too high in the AM, normal by PM. They pulled labs as soon as Bo was admitted, and they were normal! But, his hemoglobin is a little low (from all the labs!) and they want to run some extra iron into him. Some people are allergic, so the first (and sometimes second) iron infusion is run in the hospital. The nurses monitor vitals every 15 minutes for the 1st 4 hours is the protocol. So we're not here for no reason. And we got to see his GI and are waiting to see his nephrologist and hemotologist. It would have been impossible to schedule all three in the same 2 days with such short notice, so I'll consider it a wash. Meantime, Bo and Jose are catching up on their sleep. What a way to spend your birthday, poor Jose.