Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, September 4, 2008
Wednesday, September 3, 2008
First Feldenkrais Lesson in Town
He was NOT into his Feldenkrais practitioner. He wasn't into his ABM practitioner either. But he wasn't scared of her. She is an older Chinese lady and bears a striking resemblance to me and my mom's side of the family. She did some accupressure for all of us, as well. Yum!
Above is my current desktop. Below, a cute picture before our current heatwave.
Tuesday, September 2, 2008
Quiet Weekend at Home!
Bo lost a smidge of weight and was acting a little funny this weekend, but not worrisome enough to send us to the Inn. His labs were drawn this morning and I am hoping hoping that we don't have to pack him up for another hospital visit.
Bo got to see 3 of 4 grandparents on Sunday. He was grinning from ear to ear. And Jose got to smoke a ton of meat. Yummmmm!
Saturday, August 30, 2008
So Far, So Good
Friday, August 29, 2008
Naptime for Sleepers
Happy Labor Day Weekend.
I will spend the weekend thinking about what to say to my coworkers in a few weeks during our company's United Way kickoff. Re-entry into the atmosphere is fiery, almost as fiery as re-entry into public speaking.
A Toy That's Not a Toy
Thursday, August 28, 2008
My, What a Big Head You Have!
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