Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, August 28, 2008
My, What a Big Head You Have!
He weighed in at 21.8 lbs, 28 inches and 48cm head circumference. That's a big head. Thanks for the new hats, nanimal! His head is rapidly outgrowning the ones he had.
He weighed in at 21.8 lbs, 28 inches and 48cm head circumference. That's a big head. Thanks for the new hats, nanimal! His head is rapidly outgrowning the ones he had.
2 comments:
tee hee, looks like Bo is saying "eek! I have no pants on, don't take my picture!"
xx
j
yay for big brains!
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