Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, December 7, 2009
Santa, Candles and Rodney Reindeer
There is a carousel in the mall, but the minimum age is 4yrs. We're not so much the consumers, but we're already grasping at straws for what to do in the evenings to get out of the house, now that it is getting dark so early, and now that Bo is napping like a toddler (one monster nap that consumes the bulk of the afternoon). Fortunately, we have Rodney the Reindeer (a book given to Bo by one of our fave family members, thank you!). I hope he helps take the sting out of being "too little, right now." This book has also made the prosepect of Santa and reindeer especially appealing this year. Hopefully, Bo's sleep schedule cooperates and we can get to the Xmas tree farm that has both this weekend (wooHoo!).
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment