Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, December 24, 2009
Merry Christmas!!
Eating is still sporadic, but sometimes, Bo is quite enthusiastic!
1 comment:
eeek!!! love little bo's voice!!!! xoxoxo
Post a Comment