Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
4 comments:
Such a cutie! And smartie reading up on his trains so seriously! :)
sooo cute. and oh so serious.
sooooo cute!!! oh i love his concentration expression...mr. serious scholar!!!! xoxoxox love!
troubles for thomas.... you can see the concern. xo
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