Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, April 23, 2009
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holy moly... he is so looking like jose these days... it's funny to see him maturing into his toddler look and out of the baby look.
looove seeing the quilt (hee)... and yay for sleeping in. ugh... persistent ear infections suck. I hope the new stuff works. spring is bad for us with the allergies and the drainage and the ears. oi. But we'll take it happily - bring on spring!!!! I am so glad to have winter over for a while. whew.
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