Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, August 6, 2008
Bo Birthday Extravaganza
Feast your eyes on these. I hope this makes up for my temporary absence from the www. A short blip of insanity. Like I was saying tonight, Bo was planned, losing my mind was not.
oh my goodness!!!!!!!!!!!!!!!! love you big bo!!! can't call you little bo anymore because you are beautiful and enormous and i love every little inch of you. xxoxo sunnywave & the squirrel.
p.s. aunty heathre arrived safe and sound today!! xoxoxo
Feast your eyes on these. I hope this makes up for my temporary absence from the www. A short blip of insanity. Like I was saying tonight, Bo was planned, losing my mind was not.
1 comment:
oh my goodness!!!!!!!!!!!!!!!! love you big bo!!! can't call you little bo anymore because you are beautiful and enormous and i love every little inch of you. xxoxo sunnywave & the squirrel.
p.s. aunty heathre arrived safe and sound today!! xoxoxo
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