Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, May 14, 2008
Sleeping Beauty
After Bo is asleep for the night, one thing I often find myself doing is scrolling through the most recent pictures we have of him in our camera.
1 comment:
how can you resist? i come here to scroll through the pictures you've shared!
Post a Comment