Jose and I were beside ourselves, wondering if he would make it to the next month or first birthday? The docs who diagnosed him told us that we had to seriously consider a small bowel transplant and probably a multivisceral transplant because the IV nutrition usually damages the liver excessively. And if his liver didn't explode in the first year of life, then he'd probably succumb to a line infection. The first MID patient they diagnosed went into liver failure by 4 months of age.
He's almost 5 weeks old here.
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