Baby Aunt

Bo's great aunt, my mother's only sister, passed away suddenly this week. Not enough tears were shed. Are they ever? She would have turned 59 in November. There is not enough solace in the world to comfort the unmooring of reality.

Ready to Celebrate

My self-imposed travel restriction ends next week. I just feel so relieved and joyful. Still a few things to wrap up before the finish. But so close. Bo will be out of his cast in 3 more weeks and we will celebrate that, too.

Love Gramma

This and the following (previous post) pix are from August visit to Great Gramma's and a campsite nearby.

More Face!

Overdue Update

Bo got his new blue cast Tuesday. He was not a fan of the cast removal process. A motorized pizza cutter attached to a vacuum cleaner that sounds like a muscle car. And even though the x-ray didn't hurt and we talked about it before hand, this was also not a desired event. Nonetheless, his tears all dried up the moment the worst was over and said, "all done!" The nurses gave him a ton of toys and a Thomas Train sticker. We will return for a follow-up in 3 weeks, and hopefully that will be then end of that.

Yesterday we spent the bulk of the day on 7South at DeVos in Grand Rapids for observation during infusion of Pamidronate (the bisphosphonate product that should help keep the calcium in his blood so the bones can grab it. If it works, then we will add an additional IV medication that will actually drive the calcium from the blood into the bones (a thiazide). The infusion was uneventful (yay) and we just watched a ton of Tommy Train vids, played in the playroom and hung out. The Nephrologist is such a gem, and I appreciate his care, knowledge and intelligence more with each clinic. The GI doc had clinic today and could not get away to see Bo, but sent her nurse. But since she and the neph are in close contact, it's all good. We will come back for clinic with both in 3 months.

Looking Through the Hole in my Heart

I told my friend who is going through the rough patch that I had a hole blown into my heart a few years ago. And just when I think it's healing a surprising reality snags it back open and just that little bit more. The world through this window is full of magic, miracles and angels. I want him to look through the hole in his heart and see the all the angels with holes in their hearts surrounding us, too. Magic doesn't just fly into your heart. Windows into other worlds don't just open to your eyes. The magic winds that brought our friend back to us blew a hole in his heart, too. It is the only thing I am ever greedy for anymore.

Too Many People

Our house today saw: mother in law, contractor, appliance guy, 2 teachers, 1 new nurse, father in law, neighbor, us. Too many people, not enough napping = early bedtime. Aside from no-nap, Bo was in high spirits.

Good News from Sir Topham Foot!

The best news possible: the break is expected to heal like any 2 y.o, and is not expected to cause any problems with his growth; and we are accelerating our plans to start Bo on the Pamindronate (bisphosphonate infusion that will drive Calcium into the bones) by a couple weeks. The initial acute pain is subsiding and STF is getting inundated with hours of Thomas and Friends. I never thought I'd sit my kid in front of the TV for hours of undisputed entertainment. But then, I never thought watching him eat a cheese puff would bring me to tears of joy.

I can do nothing but surrender to the strange, joyful and unpredictable blur that is Now.