The splice went well, aside from the wailing. No TPN for 4 hours and the tongue depressor splint has to stay on for 48 hours. Attached is a very lowgrade Vimeo of us at the break dance competition at Western a month ago.
Breakin' from Kinn-Ming Chan de Velarde on Vimeo.
Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Monday, April 20, 2009
Sunday, April 12, 2009
Easter Egg Hunt 1.0
Saturday, April 11, 2009
2 hour countdown
Easter Vigil starts at 8:30pm, but I have to be there early. So in 2 hours, I'll be at the church ready to get dunked. The consolation is that Fr Ken has to get into the font, too. Another bonus, I get to wear a scratchy nylon robe (like a choirboy's), so don't have to dress up!
Here is Annika, Dyann, Bo and Yours Truly.
Wednesday, April 1, 2009
Monday, March 30, 2009
From Feb's Broviac Replacement
The lag in posting pix is one part foot dragging and one part emotional. I just can't bear to post anything scary while or too soon after it's happened. While I know this frustrates many of you kind readers who would appreciate very current photos, I just can't do it. These pix, for instance are from February's broviac replacement surgery. So the pix I posted around that time had nothing to do with this, which was soothing for me, and allowed me to look at pix of baby that didn't increase my blood pressure. And posting these pix today, a month and a half after the fact only make my heart skip a beat a few times, instead of stopping it entirely. All's well that ends well.
Sunday, March 29, 2009
SNOW!
Saturday, March 28, 2009
Holy Week, Cuz It's a WHOLE WEEK!
She was all, "Uh. No."
Bo and Jose wander around while I'm celebrating mass. Here he is admiring the kickin' stained glass peace dove.
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