Favorite Library

Cold winter days mean no more playground playdates, but more impromptu visits to the library with the best kids section. Toys, trucks, books and a small house. And lots and lots of other kids. Yay!

Abundance, Joy and Love!

Dear Internet,

We wish you a year of abundance, joy and love!

Happy New Year!

BFFs

In the lastest thumbwar between the GI and the nephrologist, the GI won. It was the more conservative call of the 2, and really a pretty reasonable compromise. Nephrology suggested increasing the volume and decreasing the cycle time of his TPN. Instead, we are staying steady with both time and volume of TPN (was really dreading an increase of volume), and a decrease of calories. While the cheeks are cute, he is simply too heavy for his height. So, we will see what we see.

Miracles Like Bo

Bo, of course, is the person who pitched a tent in my heart, just like the miracle of Christmas has pitched its tent in our collective culture. This miracle is here, living among us, whether we believe it or not. He's here. And it's because of all the greater direct miracles which I've already chronicled, and the supporting, or more easily overlooked acts which together make the miracle of an environment that can continue to sustain the likes of him (Bo).

I am no wonderwoman. I would not be the mother, worker, wife or daughter you see on these pages without a little help from: Jose, Bo's incredible nurse who is family to us, my chosen family, my coworkers, my parents, my sisters, the support networks that sustain and nourish them, antidepressants that keep my sleep schedule more manageable, my therapist who is helping me through this new territory, the team of healers and professionals who have committed to sustaining and supporting Bo, and the many scientists, doctors and nurses who may never know us, but whose work make Bo's life possible.

Happy Christmas.

Holiday Cheer!

Some of Bo's favorite people. The feeling is not always mutual (see Bumper Dog, aka Bahmpoo Dahgoo Dahgoo). Bo continues searching the guest bedroom for Po-Po!

Early Christmas with the Chans

Bo cannot wait to see all the Chans! He had appointments from 9:30am-1PM in Grand Rapids today. The nephrologists and the GI were very happy with the trend of perfect labs. We are going to try going back down to 18 hour cycles. The only change is increasing his volume to keep up with his size, and to see if flagyl will help with the reflux.

Packing all the medicine, auxiliary supplies and baby accouterments has taken me over an hour and counting. Still need to throw in my own stuff! Jose is exchanging diapers at the service. It is so awesome having them in town!

Desperately Seeking Po-Po

Bo had his first visit with his alternative medicine doc, and his first teacher and OT visits today. The reports were all glowing, and that everyone fell in love with him. And even though he had a rotten night last night, he was a prince among babies all day. At the end of the day, he was missing his Po-Po and kept walking into the guest room calling out for her. I had to keep telling him that we would see her, "tomorrow, tomorrow, I promise!"