Sad to Leave our Docs in Beantown; Glad to be HOME!

Just so no one is fooled, he cries a lot, and loudly. Mostly, when he's fighting his afternoon nap. We knew he was a fighter, but really. And if he feels like Mommy is not giving him enough attention (most of the time).

He yelped for like a minute, and went down like a box of rocks in his own crib tonight.

What a blessing to be home!

Tummy Time Victor

Along with the growth spurt is additional strength and energy. Bo has rolled over from front to back last week, and from back to front this week! Although he remains skeptical of the Tummy Time Added Value assertion, he is getting pretty good at it.

We can't wait to come home!

While we have had many adventures and a seriously amazing turn of events here, we can't wait to come home.

Chinatown still has my favorite Chinese Bakery, and Bo has discovered pigeons here. He is SO into the outdoors!

The Secret Garden

The secret garden was full of butterflies last time we took Bo there. He loves nature and being outdoors. He just gets all relaxed and zoned out. Or if we are walking under trees, he will gaze up and settle down, even on a fussy day.

We are getting discharged today!

Back in the Joint: better safe than sorry

Just what we wanted, a weekend in Boston. We have a huge room, and a view of the Boston skyline. Unfortunately, it's because Bo spiked a fever Friday (101.8F) that sent us to the emergency room just as the Red Sox were going to Denver (a good thing, considering the proximity of the hospital to Fenway Park). So far, his cultures have been negative, and his central catheter is still in the right place, so the docs think he just had a virus (or teething?). We'll get sprung tomorrow, we hope, and get to spend the rest of the week packing for our trip home.

This is me and Boo Boo at the beach a mere 100 yards from our temporary house. And a picture of him in his Luke Sky Walker outfit without his hand in his face.

Needs a Bath!

Shiny head needs a bath. This is from 2 weeks ago. When we left he was in the 1% for length, he is now in the 25%!

It's the Journey, Stupid

Our fancy doctor at the fancy University of Michigan "we're ranked 12 in US News and World Report" Hospital refused to adopt the protocol to administer Omegaven to Bo. She said that if U of M couldn't get it, then no other hospital in Michigan would be able to get it. This is patently untrue. She also said that it would be too much paperwork for her to do to get it, and that we were legally prevented from paying for it, the U of M hospitals wouldn't pay for it, and she certainly wasn't going to pay for it. This is in contrast to the docs at Children's Hospital, Boston, who put in their own money to start a Foundation to pay for the Omegaven for kids whose insurance wouldn't pay. If she's so against saving Bo's life, why would she bother to be a pediatric GI specialist? What kind of medical practice is this?

I am seriously considering moving to New England for the superior medical care. Actually, Bronson provides care on par with Boston, but they are such a small community hosptial that they do not have a pediatric GI specialist on staff.