Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Friday, April 27, 2007
Wednesday, March 21, 2007
Babymoon

We got to swim with the dolphinos at the Kahala on our babymoon. The coolest, biggest water mammals I have ever had the privilege to pet. And hug. And feed. They have sharp teeth.
We also got to spend a lot of time with our Little Friend (and her parents), who will be turning 1 year old right around the time Sparkle Primavera is due. Since we will miss her 1st luau, it was fantastic to see her on this visit. And! We got to visit my sister for the first time since she moved to Oahu. She has a staff of 80 and testifies at the capital. All around a very fun, relaxing and ohana-filled visit.
Monday, February 26, 2007
Friday, February 23, 2007
Waving at your fanclub, like a rock star

Thursday, February 22, 2007
Belly Blog


