Wednesday, July 8, 2009

Quiet = Good



I'm still digesting and savoring the sweet Oley week we had. I'll post my minutes here in a formal blog in the next week or so. Let me just say, that I had a weirdly resonant moment when someone asked me if I learned alot, and what. I flashed back to a job interview for a project manager position and one of the team members asked me what the most important time in a meeting was. Even though I had never been a PM, I instinctively said the gathering and commencement moments before and after the formal meeting, "That's where you hear the most important information, see the most important interactions (verbally and in body language), and sense the life of the project." Still true.

Spending time with the Cyrs, the Brogans, the Nobles and all the amazing long-timers both young and old was uplifting. I nearly cried into the lap of a younger hipster with a G-tube. He was so self-sufficient, so matter of fact, so aloof, yet so compassionate. Someone I hope Bo will be able to look up to for a long time.

Rennie and Jennie kept Bo amused so I could attack multiple sessions each day. And even though it poured rain every day but the last, with threats of hurricanes, and even though we ate way more hotel food than I had hoped, we all had an amazing time. Bo was already aware that the other attendees had lines of their own. He pointed to his line and showed it off to a 15 year old, who in turn, showed Bo his line. So he had no interest in the daycare (too young for it to be amusing for long)? He had fun chasing Rennie and Jennie. He slept through the night each night, took nice naps daily and only cried for a few minutes for each airplane's descent. Good Boy!

Summer ramp up has kept us busy. 4th weekend with my parents, this weekend is my niece's 3rd birthday and family from Detroit and NY are visiting here, Bo's godmother and her husband will breeze by the following week (which will be a grueling combination of kowtowing and chauffering our Japanese agent and customers), and the following week is a Childs'pace workshop in Chicago. Whew! It'll practically be August by then. Where did the summer go?!

Saturday, June 27, 2009

Oley, Here We Come!




We're headed to the Oley conference which is in St Pete's, FL this year. And depending on how Bo travels, we plan to be in A2 for the 4th weekend. It's going to be extremely hot, and Bo gets overheated very easily, so I'm a bit nervous. But we buzzed his hair off (these show of his now defunct Bruce Lee mullet), and it seems to help. The heatwave here has lightened up a bit and instead of unbearable, it's just a little hot at midday.

Medically, Bo remains stable (knock wood). His GI was very pleased and said he's just on maintenance right now. The nephrologist said as much in March. Bo will see both again in October. His feeding therapist is making very nice progress with his toothbrushing goals, and we look forward to more Feldenkrais lessons in July at a Childs'pace workshop (if not sooner with his teacher). His gross motor skills are still lagging, but everything else seems good!

On the home front, the garage is now standing tall- we will re-roof it next year. The window replacement project was itself replaced with a window trim/sill rehab project (much more affordable, thank goodness, and justified with an energy audit). And we've added an insulation project to the tree trimming project for this fall. Yikes. But considering we did nothing to the house these last 2 years while we were so focused on Bo's health, I guess it's time to pay the piper (the home maintenance piper). Sigh.

We celebrated Father's Day Eve at the 4 diamond restaurant in town (yum!) and drove to A2 on the fly to spend time with both our fathers. Can't wait to see Jose's brother and his partner in Florida! And finally meet all our cyberfriends in person!!

Tuesday, June 23, 2009

Dog Study (mucosal transplant) and, Pig (stomach and intestine)

Correcting myself, Stelzner's group recently published a paper where dog's were the animal model for curing something like MID (problems with the mucosa), "Intestinal Stem Cell Organoid Transplantation Generates Neomucosa in Dogs." They had cured rats with malabsorption with this experimental design several years ago, and just published this dog study. The next step might be pigs, unless they jumped right into people, which they can now do, since Lgr5 was finally identified as the human intestinal stem cell (these other animal models have well established intestinal stem cell population).

The pig study was a triumph for group effort from Mass Gen and UCLA, "Tissue-Engineered Small Intestine and Stomach Form from Autologous Tissue in a Preclinical Large Animal Model." Basically, mashed up intestinal cells, schmeared this paste onto a bioscaffold they stuck into the pigs' belly cavity, and ta-da! Stomach and intestines formed, including muscle and nerve structure.

Race Car Crash

Race Car Crash from Kinn-Ming Chan de Velarde on Vimeo.