Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Tuesday, December 9, 2008
Crammed into the Kitchen Sink
Monday, December 8, 2008
Sunday, December 7, 2008
Saturday, December 6, 2008
Still Bouncing
Friday, December 5, 2008
Thursday, December 4, 2008
Wednesday, December 3, 2008
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