Bo's head looks bigger than Jose's. Currently this is only an optical illusion. I won't be surprised if it shortly becomes reality.
Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Wednesday, November 12, 2008
Tuesday, November 11, 2008
Friday, November 7, 2008
The 80's Are Back
Thursday, November 6, 2008
Wednesday, November 5, 2008
Too Many Teeth!
Thursday, October 30, 2008
Chan Weekend Upcoming!
From my mom's (PoPo's) last visit here. Bo can't wait to see PoPo and GungGung.
His molars are trying to come out, but he's not chewing on hard enough toys. I guess the finger doesn't count.
His IEP is next week. His weight dropped slightly to 50% for age, his height increased slightly to 5% for age and his head, you ask? 85% for age. That's my kid. Big head. Big brains.
Tuesday, October 28, 2008
Aunt Andy

Andrea Rosenberger, beloved Aunt Andy to Bo, chosen sister, artist, potter, designer, daughter and all around nutter. Strong, professional, driven and responsible. Riotous, literate, inquisitive. We shared a worldview. We are devastated.
We found out that she died from a massive aneurysm this passed weekend. She was the youngest of 3. Her brother passed away several years ago and I think of her heartbroken parents.
The heart is a funny thing. It just keeps breaking.
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