Life is miraculous. We are amazed and grateful for our blessings and all our beloved family. Truly a Thanksgiving.
Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, November 15, 2007
Walkies!
Life is miraculous. We are amazed and grateful for our blessings and all our beloved family. Truly a Thanksgiving.
Thursday, November 8, 2007
Before, After and Beyond
This is before and after Omegaven. You can see how much bigger he is now, and how much better his color is.
Hooray for DeVos Childrens' Hospital. We found out today that they approved the protocol that will allow us to get our Omegaven here instead of having to go to Boston bimonthly.
PIC appear: after, before, before, after (wonky alignment issues, sorry)Sunday, November 4, 2007
Sad to Leave our Docs in Beantown; Glad to be HOME!
Wednesday, October 31, 2007
Tummy Time Victor
Tuesday, October 30, 2007
We can't wait to come home!
The Secret Garden
Monday, October 29, 2007
Back in the Joint: better safe than sorry
This is me and Boo Boo at the beach a mere 100 yards from our temporary house. And a picture of him in his Luke Sky Walker outfit without his hand in his face.