Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
omg omg omg. love him!!!!
ReplyDeleteI love the truck video - especially when Jose asked for a truck and Bo told him, "No!" It sounded very familiar. :)
ReplyDeleteBo's getting so big. I can't believe our little guys are almost 2 years old.
I don't chime in often, but please know that you 3 are always in my thoughts and prayers.
XO, Dawn