Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
awwwwk!!!! Love.these!!!!!!! muuuaaah!!!
ReplyDeletelook at that chunky baby! yummy... and Bo looks so dapper in his school picture!
ReplyDeleteLOVE. Thank you!!
ReplyDeleteLove these pics. They are both so sweet.
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