Bo Blog (the crucible...)

Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.

Wednesday, December 23, 2009

The Hugeness!



the crucible at 4:02 PM No comments:

Sing Along



the crucible at 9:54 AM 1 comment:
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the crucible
mothering 2 Gemini's, living in the unholy land where law meets science
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