Bo was born on 6/3/07 with the rare congenital disorder currently known as Microvillous (Microvillus) Inclusion Disease. It took 2 hospitals and 5 weeks to diagnose. He became the 61st baby in the US to receive Omegaven. His nutrition is 100% TPN/Omegaven. We believe there will be a cure for this in our lifetime, and that a transplant is NOT the best option for this disease. This is our story.
Thursday, November 20, 2008
Must Get Walkies!
Rockin' the hat-hoodie combo. Both gifts from beloved aunties. As well as the retro wooden wagon. Lovin up the aunties. Mmmmm.
oh my goodness those cheeks are stamping their glory into my heart. LOVE YOU!!!!!!!!!
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